Tuesday, September 3, 2013

So Much Augh

Every minute I think we'll get a little break, it's back to the blur (coin termed afaik by the wonderful ladies at RantsFromMommyland).

Admittedly, July was fairly quiet. I'll hold on to that thought. August was somewhat crazy with re-organization and cleaning and the usual yearly back to school shopping and planning, as well as re-enrollment and new enrollment for 3 different demonchildren in 3 different schools. That's enough crazy for a good dose of rum.

September has arrived and things still aren't settled down. Now, I won't blog much about this, because I have this resistance to posting anything that sounds "pity me". I have a lot of health problems and mobility issues, and will leave it at that without going into detail. The only reason I've chosen to share this is to explain the logistics of some of the decisions below.

We have requested to add bussing service to home from school at the end of the day for DemonPrincess in her IEP. We may only live 3 blocks from the school, but I can't be a reliably transporter. Her disability means she cannot walk alone; I have not found anyone else to walk with her. DemonSpawn had this duty, until his seizure meds were changed..

We're also going to have to ask about bus service for DS under his 504. The new meds he is taking can inhibit his ability to feel thirst and to sweat - a deadly combination in the 100 degree Texas heat. No walking or bike riding for the foreseeable future.

Have I mentioned neither one of them have ever ridden the bus? That while I think DemonPrincess will be really excited at the idea, I worry about stigmatization with DemonSpawn since it'll be the special education bus and he's in high school? High school kids can be such assholes about such things.

We have an ARD continuance for DemonPrincess tomorrow, except she's sick and I have no sitter. This may not be the last continuance either and I can see it taking over half of September. Just the records request I did has topped 800 pages with no relief in sight. And wow am I getting pissed sorting through those. Some of these people should never have been allowed contact with children.

September 21st will be her birthday. Again we debate - do we try a class-invited party and worry if people will show up/understand her at the party? Do we stick to a family party at home with a couple of friends invited outside of school that do understand her? We can't keep her in a bubble and usually don't, but I'm always so leery about doing something for her birthday that might only cause upset and ruin a nice day for her.

I wish this kid stuff was easier. Don't we all?